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Profession:: Creative Artist

Web site:: http://health.groups.yahoo.com/group/FibroMECFSChronicPainFriendsan...

About Me:: Hi! I am a Mom of 1 teen boy that has been so supporting and a wonderful help to me ! Yes I am married and Don is helpful but I think my ChronicPain stresses him out a lot and since I cannot work anymore this makes it even more stressful on the home front. But he won't admit that and he is STILL learning about my Pain everyday I have to deal with and my short term memory loss has caused me to repeat things and I don't think he can handle that either. What I have is Fibromyalgia - Chronic Fatigue Syndrome - Myofasical Pain syndrome - short term memory loss - TMJ - IBS - very close to Raynauds Syndrome - and more. I have been told by Doctors and specialists that I am not able to work anymore physically.I have been fighting for rights to my SSDI and I went to a hearing and haven't heard a thing yet. So I sit home and I get bored and very lonely. I can't work - I can't vaccum and more. Lately it has been hard for me to type and i am just so bored and I cry alot out of frustrations of things I can't do like I used tobe able to do and I also cry that I think my husband can't handle my Illness. I am also a wonderful mom to 2 wonderful cats and I will tell you they are my babies and they keep me company during the day while everyone is gone for the day either at work or at school. I am a Christian Lady and I believe God is with me everyday of my life otherwise I wouldn't be here! I was diagnosed in 1998 but the doctors think I have had it alot longer then that maybe since I was born. I also have paralysis on my mouth so my smile is crooked. I get self consious about it but I still try to smile no matter what! God wants us to smile!!

What I hope to gain from this network...: I hope to make new friends that can help me through my days of pain. I love to make new friends. I also do a lot of research on our illnesses so i hope to learn even more positive ways to cope with these diseases. there is a reason for everything the way things work out and I just have to learn to accept them and I hope to find friends through this network to help me to cope.

Best Recommended Resource and Why: Any Illness Ministries - because there is the Love of God involved! I know he loves me and I know that he loves all! These are great groups to get to know the right kind of people to help you though your days!

Have you heard of Rest Ministries or HopeKeepers?: Yes and I learned about them through our FM/CFS/Chronic Pain Barron County Support Group in Northern Wisconsin ( we wear our hope is a choice tshirts a lot!!) that's my most favorite tshirt!

Comment Wall (6 comments)

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At 3:24am on June 21, 2009, Rubie Bullock said…: Wanna view my cam?, come see me here We'll really have some fun! freelocalcams.info

At 7:25pm on November 17, 2007, Sandra said…: Hello fellow Fibrogal...
Just joined 10 minutes ago and what an encouragement to read your notes because there are so many similarities. Pain, loneliness, fear, discouragement, frustration, pain, loss of memory, misunderstandings, pain, exhaustion, struggling to fight another day, oh and did I mention pain? I will pray for you and your disabilities fight, and I hope that you will contact me as well. XO Sandra

At 1:47pm on October 3, 2007, Wisconsinfibrogal said…: Thank you so much Ladies * happy tears* you have made my day today and I know there is going to be some wonderful friends in here. I know that already.

Before I started my day today I sat and Prayed to God and then I did some meditation, which that helps alot. Then I went to visit my friend Ann that is in a Assisted Living Facility ( I met her at the Barron County Support Group here in Wi.) and I visited her for awhile with another friend that has the same Illness as us and then after that we went to see Jean's brother that is in a Nursing home and he has Lugarets Disease ( spelling?) and it was nice to visit him too. So I didn't sit in the house today and God made it possible for me to enjoy my day today. God knew I was depressed lastnight. So he said "Go do something today" and I did. I thank God everyday!

At 9:08pm on October 2, 2007, Angela Dobbins said…: Hello, Wisconsinfibrogal!

Welcome to the network. I'm happy you're here and glad that you found inspiration watching the video, "One Man's Inspiring Outlook on Life". That one touched me so much, as well, when I discovered it on the web. I wanted to share it here with others.

I'm sorry that you are in such pain...I understand how difficult it can be to find understanding and acceptance from those we love. My husband and extended family members had/have a difficult time accepting my illness, as well. (I have diagnoses very similar to yours). I know it's hard. But your faith in God and willingness to smile when all seems hopeless serve as a shining example and comfort to others. Don't doubt that! :)

Here is a big, gentle ((((((((((((hug)))))))))))))) for you! You keep smiling now, and hang in there...cause, we're gonna make it!!!

Blessings,
Angela

At 4:45pm on October 2, 2007, Jennifer Saake said…: My heart hurts for you in all your struggles. Yes, God has a plan and purpose even in the midst of this, but the waiting seasons sure are painful, aren't they!? {{{hugs}}}