Darlena Gordon's Friends

View All

Darlena Gordon's Page

Latest Activity

Profile Information

Profession:: Full time job taking care of my dad's estate who just passed away 10-25-2007.

About Me:: I am 44 yrs old and although diagnosed with Fibro about 6 yrs ago, I can relate many symptoms going back to my early teens. I got married for the first time in May of this year. I have Fibromyalgia, Hypothyroidism, Chronic Fatigue Syndrom, RLS, Sleep Apnea, Crohns Disease...... God only knows what else or if these are all misdiagnoses and something else The hardest part for me is the lack of support from my family and friends. Most think it's mind over matter - just exercise, do something and you'll feel better. I wouldn't wish this on anyone, but sometimes I wish they could live a day in my shoes. It would be a real wakeup call. Especially for the doctors. I recently relocated to Arizona due to passing of my dad. While I miss him, I know he is not suffering anymore.. Lost my mom to lung cancer in March, my dad to CODP, Emphysema and Pneumonia in October. This has been the hardest year of my life. I'm trying to stay positive and look at this move as a fresh start.

What I hope to gain from this network...: Support from others in with similar conditions and to offer back my unconditional support.. To continue to educate myself, family and friends on these diseases.

Best Recommended Resource and Why: www.fms.com..... this is great website with lots of resources and support.

Have you heard of Rest Ministries or HopeKeepers?: I'd heard of Rest Ministries, but not HopeKeepers.

Comment Wall (8 comments)

You need to be a member of Illness-Disability-Healthcare-Caregiver Ministry Network to add comments!

Join this social network

At 3:24am on June 21, 2009, Rubie Bullock said…: Wanna view my cam?, come see me here We'll really have some fun! freelocalcams.info

At 5:26pm on December 12, 2007, Sandra said…: Dear Darlena, How are you? I am praying for you to have peace, strength, and wisdom for the decisions you need to make. My heart is with you today..love, Sandra

At 12:54am on December 8, 2007, Sandra said…: Hi Darlena,
I was just wondering how you are, and I am continuing to pray for you. Keep your head up! LOL Sandra

At 6:56pm on November 19, 2007, Sandra said…: Hi Darlena, I just wanted you to know that I am praying for you. You are heavy on my heart and I feel such a burden to pray for you throughout the day. It is a privilege to feel touched by the Holy Spirit again in prayer. He loves you, and you are the apple of His eye. He has all the wisdom you need to bring you through this difficult time. OH, my husband is a licensed carpenter so if you have any questions about how to get started with fixing the house, what you should ask a contractor, etc. He would be happy to help you. If there is any way we can help you in a practical way, please let us know. The prayers you can count on.

At 7:25pm on November 18, 2007, Darlena Gordon said…: Sandra - This has been a very trying year for sure. But I know that God will pull me through it. I wasn't quit so sure yesterday. I wanted to choke my hsb and dtr. I gave them very explicit instructions on closing up our apt in Jax and both just did what they wanted. I finally chewed them both out and refused to speak with them the rest of the day. Childish maybe, but it was a language that finally got through to them. I'll go into more detail later. Things were better today. They both worked hard together and knocked it out. I was always a single parent and raised my dtr by myself. I just got married in May for the first time at 43, have since turned 44. My dtr turned 21 on 11/8. She has a hard time sharing me with anyone, and now she has a stepfather. We don't speak that word to her. Max is very understanding and tries very hard to be patient with her. I hope and pray today was a turning point for them. I was so disgusted with both of them yesterday. I'm like you in that I'm timid in social situations. Even more so now with my health issue's. It's just easier to avoid dealing with people who don't "get it". But I'm finding people are more understand ng here in this small community. I truly feel like I have a fresh start. More later..... I am so exhausted after dealing with the last two days, and it had nothing to do with taking care of my dad's stuff. I'm just going to go crawl in the van and go to sleep. I'm hoping the contractors will come tomorrow and start the cleanup on the house. I still have so many phone. calls to make. Credit card companies, utilities, etc. I just haven't been able to deal with it. I haven't even done his obituary yet. Terrible, huh? When this part is over, I'll have a brand new house, but I'd still rather have my dad back. I keep wanting to call my mom and talk to her, but then I remember she went first this year. We truly are in a battle with Satan, but God will prevail. We will stick together. I'm so glad you found me and I you! Gentle hugs, Darlena

At 1:28am on November 18, 2007, Sandra said…: Hi Darlena, I can't imagine the burdens that you are bearing right now. The overwhelming sense of loss on top of changing your whole life around would've sent me scurrying under the covers with my darvocet. I can't even begin to have a frame of reference to identify with that. I will truly pray for God to grant you peace and wisdom. Gee, comparatively, I feel like my stuff is a walk in the park. I think I told you what I have, but every day is different. Every day is a battle, but sometimes it's more emotional than physical, and sometimes it's both. The battle is ALWAYS in the mind, though. Now, with the pain, I find that I fight fear more than anything else. I'm a little timid in social situations by nature, so now I always seem to be at the crossroads of being afraid to venture out socially in case my body gives out, and between the desperate loneliness and isolation. My husband tries his best to understand and to help me cope, but then I have guilt for not being a more active wife. We also have been trying for about 11 years to conceive and now at 42 that dream is dying (at least the pain makes THAT easier to bear). It sounds very moan and groan, doesn't it? On the up-side, I am truly favored by God that I can still go to work and teach. If I were with any other grade, or any other profession I would be on disability. Plus, I was diagnosed after I had already been there 5-6 years, and so I had a respect and comfort level built up. That really helped. Also, how many people, longing to have children, are surrounded by children every day and are impacted by them? Plus, just to live in a country with clean water, warm beds, a great team of doctors, and drugs to help you cope with it all...No, all in all I am blessed. Speaking of "drugs" I never heard of that stuff you mentioned. Do you have any more info on it? Do you take any pain meds that you found helpful? What about alternative therapies? I also just got this heatpad on amazon called "relaxa-bubba" which I love because it is unscented and it's designed to go across your shoulders and at the same time down your spine. That helps me relax when the pain is intolerable. Sorry for the novella here...God Bless! Sandra

At 10:14pm on November 17, 2007, Sandra said…: Hi Darlena, I happened to notice that you are online. Are you having a hard night? Would you like to talk?
Sandra

At 9:28pm on November 17, 2007, Sandra said…: Hi Darlena,
I just joined about oh...an hour ago and I found you! I also have FM, myofascial pain, ibs, fibro-fog, chronic fatigue with insomnia (how nuts is THAT!) blah, blah blah. I am a Pre-K teacher and am blessed that I can still work. Any other job and I'd be on disability for sure. I'd love to talk to you online if you are interested. Tell me some more about yourself. What do you find most challenging? Is there still joy? Keep your chin up...Sandra